Squad 7 Helps Raise Funds for Neurofibromatosis

Members of Squad 7 gathered to support the Jacksonville Children’s Tumor Foundation Fun Run to help raise awareness and funds to end Neurofibromatosis.

About NF Walk

NF Walk Program – Purpose
The Children’s Tumor Foundation’s NF Walk Program was established in 2009 as a fundraising initiative to support NF research, raise awareness, and provide support for individuals with NF and their families. A key feature of the Walk program is that it is a community-based event, organized by local volunteers, with teams comprised of five to ten members. NF Walks offer the opportunity for those affected by NF, their families, friends, and neighbors, in fact, whole communities, to join together in a truly enjoyable event, while raising funds for NF research.

NF Walk Program – Core Values
The NF Walk program is committed to serving and supporting our teammates professionally and compassionately. Our goal is to make each Walk the best experience possible – one that is enjoyable, fulfilling, and inspirational. We are with you every step of the way in our shared mission – “Ending neurofibromatosis through research.”

What We’ve Accomplished in Three Years with Your Support

  • Together, we have raised over $2 million for NF research.
  • Together, we have taken more than three billion steps across the US.
  • Together, we have dramatically raised NF awareness nationwide.
  • Ending Neurofibromatosis Through Research

Much progress has been made in neurofibromatosis research and the Walk Program has played a considerable role in helping the Children’s Tumor Foundation function as the largest non-government funder of NF research. Monies raised through Walks help fund the Foundation’s comprehensive research programs, raise awareness about neurofibromatosis, and support people living with NF. It is the work we do that will help lead to effective treatments for NF and eventually, someday, an end to NF.

Children’s Tumor Foundation

Since its inception in 1978, the Children’s Tumor Foundation has grown into the largest non-government funder of neurofibromatosis, or NF, research in the world. The Foundation is the driving force behind research aimed at finding treatments and a cure for NF – a common, yet under recognized progressive disorder that causes tumors to grow on nerves throughout the body. NF affects one in every 3,000 children, more than cystic fibrosis, Duchenne muscular dystrophy and Huntington’s disease combined, and can lead to a wide variety of complications, including blindness, bone abnormalities, cancer, deafness, disfigurement, learning disabilities and excruciating and disabling pain. Pioneering NF research funded by Children’s Tumor Foundation is shedding new light on cancer, brain tumors, learning disabilities, and bone abnormalities – ultimately benefiting the broader community, in addition to those with NF.

In addition to funding world-class research, Children’s Tumor Foundation is committed to ensuring that every dollar raised is put to the very best use to improve the lives of those living with NF. The Foundation is a recipient of a four-star (highest) rating from Charity Navigator – America’s largest independent charity evaluator – and was recently cited in the New York Times for our commitment to financial transparency.

The Children’s Tumor Foundation is a non-profit 501(c)(3) medical foundation. For more information, please visit the CTF website.

Get Involved – It’s Easy!!

  • Champion – Register to participate in an NF Walk or help us organize/start a Walk in your area.
  • Invite – Ask your friends, family, and co-workers to register to walk or donate to a Walk event. Or they can assist in set-up, event-day registration, and other planned activities at Walks.
  • Invest – Donate to a participant or team.

NF Walks are open to all ages and abilities. Walks are held at parks, schools, or tracks in your community and are, on average, three miles long. An NF Walk is fun, educational, and uplifting. It’s a celebration of hope and of the accomplishments and abilities of those living with NF. Whether you have NF, know someone who does, or just want to show your support, come join an NF Walk in your community!